Provider and Patient Resources

Learn more about transfusion-dependent
beta-thalassemia (TDT) with these resources

blood cells

Provider and Patient Resources

Learn more about transfusion-dependent
beta-thalassemia (TDT) with these resources

Educational Resources

Educational Resources

Explore these resources for more information about transfusion-dependent beta-thalassemia (TDT).

Resources for you

Challenge TDT Guide

Challenge TDT Guide Challenge TDT Guide

An overview of TDT, transfusion therapy, allo-HSCT, quality of life and more.

Resources for your patients

Help patients better understand the current impact TDT has on their lives, set goals, and plan for the future.

Understanding Beta-Thalassemia Brochure

Understanding Beta‑Thalassemia Brochure Understanding Beta‑Thalassemia Brochure

A quick, takeaway guide to help patients better understand the genetic basis of their beta-thalassemia.
Patient Goals Guide

Goals Guide Goals Guide

A guide for patients to help them create a care plan with their care team for short- and long-term goals.

Expert & Patient Videos

Expert & Patient Videos

Hear what beta-thalassemia experts and real-life patients have to say about treatments and quality of life with TDT.

Expert Perspectives

Transfusion Therapy Videos

TDT expert Dr. Cappellini discusses transfusion therapy, iron monitoring, chelation, adherence to treatment, and her key takeaways.



Allogeneic hematopoietic stem cell transplant videos

Allogeneic HSCT expert Dr. Baronciani discusses the history of HSCT, clinical outcomes in patients with TDT, and making the decision to undergo HSCT.

Patient Perspectives

Hear from real-life patients about the challenges they and their families face when living with TDT.

Academic Publications

Academic Publications

Links are provided for informational purposes only. We do not make or imply any endorsement of external websites or organizations.

TREATMENT GUIDELINES

Find guidelines for the standard management and monitoring of patients with thalassemia, how regular transfusion therapy extends life expectancy, and complications of therapy.

ALLOGENEIC HSCT

Learn more about allogeneic hematopoietic stem cell transplantation in thalassemia, effects on patient quality of life, and managing iron overload.

Professional and Patient Organizations

Professional and Patient Organizations

Here are some* professional and patient organizations with helpful resources and information about beta-thalassemia, transfusion and chelation therapy, allogeneic HSCT, and the impact of TDT on patients’ lives.

Professional

Professional

Patient

Patient

*Not an exhaustive list of all organizations.
Links are provided for informational purposes only. We do not make or imply any endorsement of external websites or organizations.